A patient without an advocate does not get the best care. This is for the people doing that job, usually alone, usually while holding down everything else.
I am Susie. My husband has been ill for two years. I have sat in hospital rooms at 2am being asked the same questions by people who do not talk to each other, and I have spent my own money on his care without tracking a dollar of it.
I am a CFO. Organizing chaos is what I do for a living. So I built the things I could not find, and I am putting them here.
Start with the free page
The One-Page Emergency Summary is the page you hand a triage nurse instead of reciting a medical history from memory while frightened. It is free, and it is the single most useful thing on this site.
The Steady Caregiver Binder
Twenty pages, printed large, covering the medical, the paperwork and the money. Especially the money, which nobody else gives you.
Somewhere to say the true thing
A private group for people caring for a parent or a spouse. No diagnosing, no judgment, and grief is welcome.